January / 2012
I am 8 years old! I love to battle with my army men, play with my ninja legos and hang out with my family! Oh and ride my bike. I got this really cool dirt bike. It’s so much fun- especially when my sister rides her barbie bike with me and baby Sebastian is pushing his little car behind us…
This year I am super duper busy with school and sports- and my first Communion! I’ve been playing basketball & baseball and learning lots of fun stuff with math and science. This new math system we’re learning in school is really cool. I love it! My school, Oak Hill Academy, has been really good helping me with my health. My family really appreciates it. And my friends- well they are just the BEST EVER! One of my favorite things to do with them is our sports ‘club’. It’s on Fridays. Best way to end the week! Woohoo! I also love it so much when we see my NY City friends and Mommy & Daddy’s college friends. They are the best too!!
On the weekends I hang out with my family. Friday nights we usually have game night or dance party night. It’s fun! Skylar-Rose usually likes to do the dance one but I like the games better. Either way, it doesn’t matter. They are both fun. Every Sunday we see my cousins and Mama & Papa when they are not in Miami. I love all the yummy pasta and food Mama makes. Even the anchovies. I’m trying to get baby to eat them too. Hehe!
So, you know I have CF. It’s ok. I wish I didn’t have it- but I do. Sometimes I ask Mommy if it will go away. It makes me sad when she tells me it won’t. I have lots and lots of meds to take and have to do a special workout 2 times a day with my vibrating vest. It takes a really really long time but Mommy & Daddy tell me I have to do it. It’s not a choice. Bummer! Sometimes I don’t like it but it does make me feel better. This winter was tough cause I had to battle a lung infection and I grew this ugly bacteria in my lungs that won’t go away. Yuck! Sometimes I do NOT like CF!
The best thing about Cystic Fibrosis is all the cool stuff we do to tell people about my disease. Like this website! And of course the really cool walk we do every year in New York City with my best buddy ever, Lonnie Quinn from CBS! He’s a really cool guy. This year Lonnie & I got to film a commercial together with Boomer Esiason. Oh my god, it was so much fun! Together we promised we will ‘Blow Away Cystic Fibrosis’…
You know what’s cool? There are so many ways you can be apart of helping me and CF. You can come walk with me or support me in the NYC Great Strides Walk! My Aunti Dani even has this way cool Pilates In The Park event in Hoboken. She told me to tell you your belly and legs will hurt after. Is that good?
Well gotta run. I have my email so send me a note. Would love to hear how you are doing too!