The Gift of Life for Stanley: Study Participant #001

Stanley participated in the life changing drug Trikafta over a four year period and has seen a tremendous increase in lung function, has cut back on required daily antibacterial medication, and experienced an overall improvement with managing his health.

Trikafta Approval!


Treatment approved for approximately 90% of patients with cystic fibrosis, many of whom had no approved therapeutic options.

“At the FDA, we’re consistently looking for ways to help speed the development of new therapies for complex diseases, while maintaining our high standards of review. Today’s landmark approval is a testament to these efforts, making a novel treatment available to most cystic fibrosis patients, including adolescents, who previously had no options and giving others in the cystic fibrosis community access to an additional effective therapy,” said acting FDA Commissioner Ned Sharpless, M.D. “In the past few years, we have seen remarkable breakthroughs in therapies to treat cystic fibrosis and improve patients’ quality of life, yet many subgroups of cystic fibrosis patients did not have approved treatment options. That’s why we used all available programs, including Priority Review, Fast Track, Breakthrough Therapy, and orphan drug designation, to help advance today’s approval in the most efficient manner possible, while also adhering to our high standards. The FDA remains committed to advancing novel treatment options for areas of unmet patient need, particularly for diseases affecting children.”

Read FDA Article Here

Making Great Strides with Lonnie Quinn and Stanley

NEW YORK (CBSNewYork) — Taking Steps With Stanley and Lonnie.

Great Strides Walk Interview

CBS Good Morning America, CF & Stanley 2018

NEW YORK (CBSNewYork) — Thousands will take a step in the right direction next Sunday.

They’ll be making great strides in the fight against cystic fibrosis. Family ambassadors Dawn Zolek and her son, Stanley, stopped by to chat more about the Cystic Fibrosis Foundation.

View CBS Website Link

Times Square Billboard Video

Live on CBS Great Strides Walk 2015

PSA on CBS with Lonnie Quinn

PSA’s on CBS with Boomer and Lonnie

2009 PSA with Boomer Esiason!

Stanley + NYC streets = Awareness

Industry Magazine
Breathing White for Cystic Fibrosis

View Article

Community Magazine
What You Need To Know About Stanley & CF

View Article

Community Magazine
1st Annual Breathe White for CF Event Raises $35K!

View Article

Tribeca Trib- Stanley’s World
Story By Carl Glassman – Tribeca Trib

View Article

Downtown Express- Local Boy Inspires Community
Local Boy Inspires Downtown Generosity for CF

View Article

Jerry Cahill Podcast
Raising Money for a Cure with Jerry & Boomer

Listen To Podcast

Great Strides
Who Do You Walk For?

View Article